Working with Carers

What matters to people or the key elements of a personal outcomes approach apply whether working with people using services, with unpaid carers or families.  However, outcomes for carers are different in some ways, and specific challenges arise in working with young carers and adult carers.

Work commissioned by the Scottish Social Services Council was recently completed with carer organisations and the Personal Outcomes Network. They produced an e-book to to support organisations and practitioners to prepare for the changes resulting from the Carers (Scotland) Act 2016. The ebook is available here Personal Outcomes Planning Resource and pays attention to:

  • The practicalities of identifying personal outcomes with carers
  • Developing Adult Carer Support Plans / Young Carer Statements
  • Supporting carers to achieve personal outcomes over time

Earlier resources below address  issues from identifying carers and supporting diversity, raising practitioner awareness of carer issues, through helping carers and practitioners to understand the potential value of carers assessments, to supporting carer organisations to evidence their impact.

Supporting the health and social care workforce to work in partnership with carers and to achieve better outcomes

Equal Partners in Care (EPiC) is a joint project between the SSSC and NHS Education for Scotland to make sure health and social service workers are aware of carers and know how to work with them as partners. A range of resources and practice examples are available at:

EPiC Logo

An example of an outcomes focussed recording tool for carers is the Carer Pathway that was developed through multi-agency working in North Lanarkshire.

Carers Journey Sample Tool (PDF: 342kb)

Rebecca Caulfield, Training Co-ordinator (NHS Carer Information Strategy) carried out an evaluation of the ‘Think CARER’ training programme in NHS Lothian, which aims to support all local healthcare staff to be more carer aware. The evaluation drew upon the Evaluation Support Scotland Logic Modelling for Carer Groups approach.

Think CARER Report 2014 (PDF:557kb)

Alison Jarvis from NHS Lothian published an article in 2010 outlining the challenges to community nurses as they work with unpaid carers.

British Journal of Community Nursing: Vol 15, No.3 (PDF: 115kb)

Carer’s assessment and outcomes focused approaches

Christeen’s digital story describes how thoughtful conversation with a professional during a carer’s assessment enabled her to see her life in Black and White, to recognise that she had locked herself into a role that was affecting her health, and to allow others including her family to help her. The story was created several years ago and has been used extensively at local and national events, but the core messages still resonate today.

Research undertaken in Midlothian on outcomes focused carers assessment also highlighted the value of the conversation, together with the need for a strong action orientation, and makes key recommendations for practice.

PROP Report 2013 (PDF: 5.3mb).

VOCAL (Voice of Carers Across Lothian) began to consider what ‘outcomes’ meant for unpaid carers over 6 years ago. VOCAL was one of the 8 partner organisations to take part in the Meaningful and Measurable project, and the final report below shares many important learning messages about its evolving approach to engaging, recording and using outcomes information.

Meaningful and Measurable VOCAL Final Project Partner Report (PDF: 934kb)

Understanding and evidencing how carer organisations contribute to personal outcomes

Carers organisations play a vital role in supporting unpaid carers, but can find it challenging to evidence their impact because so much of the work that they do is preventative. In support of the Reshaping Care for Older People agenda, the Stitch in Time programme worked with eleven carers organisations to capture and further develop their evaluation approach, including the creation of a carer specific logic model. The project was taken forward by Evaluation Support Scotland and the Coalition of Carers in Scotland.

Carer Organisations Case Study: Explaining and Evaluating their Contribution (PDF: 5.2mb)

EvidenceAs part of the project, Emma Miller reported on a focussed literature review to explore the wider evidence around carers outcomes and the impact of the caring role, selecting examples to illustrate short, medium and longer-term outcomes for carers, as outlined in the logic model for the programme.

A good outcome: evidencing how local carer organisations are supporting carers to achieve personal outcomes (PDF: 1.2mb)